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Top: Health: Conditions_and_Diseases: Rare_Disorders:



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French  (37)  Italian  (33)  Japanese  (15)  


  • National Organization for Rare Disorders, Inc. -  .
  • - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.

  • Cherubs - - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
  • Contact a Family - - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
  • European Organisation for Rare Diseases - - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
  • Fibrous Dysplasia Support Online - - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
  • Human Growth Foundation - - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
  • Information Centre for Rare Diseases and Orphan Drugs - - Offers an Internet portal. Includes news, forums, rare disease and orphan drug information and registration form.
  • Kindler Syndrome - - An article and case study of this rare disease. Includes links.
  • Office of Rare Diseases - - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.


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